Colleen's BA 5K

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Facebook page developed by Johns Hopkins for Children with Liver Disease and Their Families -- Liver Space

 
 

Johns Hopkins Pediatric Liver Center


The Pediatric Liver Center in the Division of Gastroenterology, Hepatology and Nutrition at the Johns Hopkins Children’s Center has treated more than 1,000 young patients with a variety of acute and chronic liver diseases, including biliary atresia. Severe liver disease is often life threatening and may necessitate liver transplantation, which can be both life-saving and problematic. By offering a comprehensive approach to the diagnosis and management of pediatric liver disease, the physicians at the Pediatric Liver Center have two major research goals: preventing the need for transplant by developing treatments for hepatitis and biliary atresia; and maximizing the success of transplants for liver failure of all causes. The team at the Pediatric Liver Center is committed to helping children suffering from liver disease, along with their families, lead better lives.

The Colleen Mitchel Memorial Fund, a component of the Greater Washington Community Foundation, was established to support biliary atresia research at the Pediatric Liver Center at Johns Hopkins and to raise awareness of the need for organ donors. Colleen’s BA 5K and 1 Mile Fun Run/Walk has raised  over $100,000 throughout the race’s five-year history to aide in the advancement of biliary atresia research at Hopkins. With these funds, the Liver Center has been able to pursue research to better understand the root causes of biliary atresia, develop digital tools to help families of children with liver disease, and investigate barriers towards liver transplantation. 

Johns Hopkins Children’s Center

As the pediatric hospital at Johns Hopkins, Johns Hopkins Children’s Center brings the collaborative multidisciplinary might and expertise of this venerable institution to bear in treating every child that crosses its threshold. Founded in 1912 as the Children’s Hospital at Johns Hopkins, the Johns Hopkins Children's Center offers one of the most comprehensive pediatric medical programs in the country, with more than 92,000 patient visits and nearly 9,000 admissions each year. It is Maryland’s largest children’s hospital and the only state-designated Trauma Service and Burn Unit for pediatric patients. It has recognized Centers of Excellence in dozens of pediatric subspecialties, including allergy, cardiology, cystic fibrosis, gastroenterology, nephrology, neurology, neurosurgery, oncology, pulmonary and transplant.

For more information, visit www.hopkinschildrens.org.


Resources

Johns Hopkins Children's Center Liver Space App  A Facebook application, led by pediatric gastroenterologist Douglas Mogul, seeks to address these problems by linking both groups through Facebook

Stool Color Guide Is your child’s poop color normal? Check out the Hopkins guide to find out.

 

News releases from Johns Hopkins Children's Center

December 2018: Split Liver Transplants Could Safely Help Sickest Children

March 2018: Giving Transplant Patients Digital Wings

February 2018: Alternatives to Whole Liver Transplants for Children Have Become Safer, Study Finds

Winter 2016:   Pediatric Liver News

October 2016: A Virtual Space for Children with Liver Disease and Their Families

July 2015:   Small Study Affirms Accuracy of Free Mobile App that Screens for Liver Disease in Newborns  

October 2014:  Poop Color Screening Could Prevent Deaths, Avert Liver Transplants and Lower Treatment Costs in Babies with Rare Liver Disease

April 2014:  The Color of Poop: Stool Guide, Mobile App to Speed up Diagnoses of Life-Threatening Liver Condition in Newborns

 

The Colleen Mitchel Memorial Fund, a component of the Greater Washington Community Foundation, was established to support biliary atresia research at the Pediatric Liver Center at Johns Hopkins and to raise awareness of the need for organ donors. 

If you would like to donate to the Colleen Mitchel Memorial Fund, please click here.  Thank you for your support!

 

Johns Hopkins Children's Center

Founded in 1912 as the children's hospital of the Johns Hopkins Medical Institutions, the Johns Hopkins Children's Center offers one of the most comprehensive pediatric medical programs in the country, with nearly 95,000 patient visits and some 9,000 admissions each year. Hopkins Children’s is consistently ranked among the top children's hospitals in the nation. Hopkins Children’s is Maryland's largest children’s hospital and the only state-designated Trauma Service and Burn Unit for pediatric patients. Throughout its 100-year history, Johns Hopkins Children’s Center has pushed the boundaries of pediatric medicine by developing and delivering the newest and best methods of treating childhood disease and injury, with a focus on family- and patient-centered care.  

For more information, visit www.hopkinschildrens.org

Donations to the Pediatric Liver Center can be directed toward Biliary Atresia Research and are most gratefully appreciated.